Feb 9, 2021
Some of us make plans for the future, some simply let each day define and shape the next. I don't think any of us anticipate every potential scenario of change, transformation, or trauma. Even the most morbid or realistic of us cannot predict or prepare for the reality of tomorrow.
That's what Maria Johnson realized as she received the diagnosis of a rare disease that was quickly denying her the ability to see. She had been concerned about her eyesight, went for dozens of tests as she realized it was getting worse. It wasn't until 7 months after she went for her first doctor visit, and only one month prior to completely losing her vision and becoming legally blind, that she finally received her diagnosis. And there was nothing to be done. No cure. No treatment.
For a long time she held out hope that she would be the exception. That her vision would return if she just believed, worked hard enough, was lucky.
Her doctor finally had the most painful conversation with her. He told her it was time to grieve her loss of vision. It wasn't coming back. It was time to consider the reality of the situation, grieve, and move on.
Maria shared the story of trying to shop for a prom dress with her daughter, the painful and beautiful way she found her own ability, despite the limitations of her disability, to participate in a meaningful way, with the help of her son and a large format iPad.
When you listen to Maria speak about her experience, you'll hear the unresolved questions of why, and you'll also hear her resolve to make her life, and the lives of those around her, a different kind of normal, an extraordinary normal, if that's a thing.
I know, it doesn't make sense, and none of it does. Something so tragic in a person's life can go so many different ways. Maria could have fallen into despair, she could have lived as a "poor me" and no one would fault her for it.
Or she could have taken the path of least resistance and simply made her way through life with the skills she had, the people she had in her life, and been, well, mediocre.
She didn't do any of that. She started a blog to share her experiences, to guide others with loss of vision, and to bring some comfort to the support network of those people, to share what their friends and family needed when they lost their vision.
She grew, transformed, and found her way toward growing new dreams, new goals. You might just be surprised what someone like Maria can do.
To learn more about her, visit her website, and follow her on LinkedIn and Facebook.
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ABOUT SARAH:
Purchase the audiobook here.
In my work with coaching clients, I guide people to improve their communication using storytelling as the foundation of our work together. What I’ve realized over years of coaching and podcasting is that the majority of people don’t realize the impact of the stories they share - on their internal messages, and on the people they’re sharing them with.
My work with leaders and people who aspire to be leaders follows a similar path to the interviews on my podcast, uncovering pivotal moments in their lives and learning how to share them to connect more authentically
with others, to make their presentations and speaking more engaging, to reveal patterns that have kept them stuck or moved them forward, and to improve their relationships at work and at home.
The audiobook, Your Stories Don’t Define You, How You Tell Them Will is now available!
Included with your purchase are two bonus tracks, songs recorded by Sarah's band, Spare Change, in her living room in Montana.